'Our daughter, 5, has devastating rare disease that has given her dementia - and she's getting worse'
EXCLUSIVE: Rosie is one of fewer than 50 people in the UK with a rare a debilitating condition, but her family and others will take on a 100km endurance walk for charity to help their girl
Black News 
EXCLUSIVE: Rosie is one of fewer than 50 people in the UK with a rare a debilitating condition, but her family and others will take on a 100km endurance walk for charity to help their girl
